Assembly Concurrent Resolution
No. 259
CHAPTER 177
Relative to Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) Awareness Day.
[
Filed with
Secretary of State
August 30, 2018.
]
LEGISLATIVE COUNSEL'S DIGEST
ACR 259, Gallagher.
Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) Awareness Day.
This measure would proclaim October 9th as Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) Awareness Day in California, and would encourage the citizens of California, on that day, to become informed and aware of PANS.
Digest Key
Fiscal Committee:
NO WHEREAS, Pediatric acute-onset neuropsychiatric syndrome (PANS) results after antibodies that are normally created in response to an infection mistakenly attack the basal ganglia in the brain resulting in neurologic or psychiatric symptoms such as obsessive-compulsive disorder, tics, and Tourette syndrome; and
WHEREAS, Misdiagnoses address the apparent symptoms with psychiatric and psychological treatment, but ignore the underlying infection and result in ineffective treatment; and
WHEREAS, Without proper diagnoses as a neuropsychiatric syndrome and clinical treatment, PANS can result in debilitating conditions that have a significant impact on the lives of those affected; and
WHEREAS, Families affected by PANS often experience problems such as misdiagnoses, difficulty finding a medical expert, lack of access to treatment, and high treatment costs; and
WHEREAS, While the public is familiar with some rare diseases and disorders, many patients and families affected by the less widely known PANS bear a large share of the burden of funding research and raising public awareness to support the search for treatments; and
WHEREAS, Residents of California are among those affected by these rare disorders because nearly 1 percent of the pediatric population in the United States suffers from PANS; and
WHEREAS, Every year, on October 9th, a nationwide observance of PANS and associated disorders is organized by patients, medical professionals, researchers, government officials, and companies developing treatments; and
WHEREAS, This year, observance of National PANS Awareness Day will take place on October 9, 2018; now, therefore, be it
Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature hereby proclaims October 9th as PANS Awareness Day in California, and encourages the citizens of California, on that day, to become informed and aware of PANS; and be it further
Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.