103930.
(a) The department shall establish a statewide system for the collection of information about veterans who have or have had a presumptive illness relating to qualifying military service, as determined by the federal Department of Veterans Affairs, that includes any of the following:(1) Health problems from exposure to herbicides, otherwise known as Agent Orange, during military service in Vietnam any time during the period from January 9, 1962, to May 7, 1975, inclusive.
(2) Medically unexplained chronic multisymptom illness from military service in the Southwest Asia theater of military operations, otherwise known as Gulf War Syndrome.
(3) Health problems from exposure to depleted uranium from military service during the Gulf War.
(b) The department shall share information in the system with the Department of Veterans Affairs.
(c) (1) Except as otherwise provided in this section, all information collected pursuant to this section shall be confidential. For purposes of this section, this information shall be referred to as “confidential information.”
(2) The department shall use the information to determine the sources of a presumptive illness identified in subdivision (a) and evaluate measures designed to eliminate, alleviate, or ameliorate their effect.
(3) Persons with a valid scientific interest who
are engaged in demographic, epidemiological, or other similar studies related to health who meet qualifications as determined by the department, and who agree, in writing, to maintain confidentiality, may be authorized access to confidential information.
(4) The department may enter into agreements to furnish confidential information to other states’ veterans health registries, the federal Department of Veterans Affairs, local health officers, or health researchers for the purposes of determining the sources of presumptive illnesses identified in subdivision (a) and evaluating measures designed to eliminate, alleviate, or ameliorate their effect. Before confidential information is disclosed to those agencies, officers, researchers, or out-of-state registries, the requesting entity shall agree in writing to maintain the confidentiality of the information, and in the case of researchers, shall also do both of the following:
(A) Obtain approval of their committee for the protection of human subjects established in accordance with Part 46 (commencing with Section 46.101) of Title 45 of the Code of Federal Regulations.
(B) Provide documentation to the department that demonstrates to the department’s satisfaction that the entity has established the procedures and ability to maintain the confidentiality of the information.
(5) Notwithstanding any other provision of law, any disclosure authorized by this section shall include only the information that is necessary for the stated purpose of the requested disclosure and used for the approved purpose, and is not further disclosed.
(6) The furnishing of confidential information to the department or its authorized representative in
accordance with this section shall not expose any person, agency, or entity furnishing information to liability, and shall not be considered a waiver of any privilege or a violation of a confidential relationship.
(7) The department shall maintain an accurate record of all persons who are given access to confidential information. The record shall include: the name of the person authorizing access; name, title, address, and organizational affiliation of persons given access; dates of access; and the specific purpose for which information is to be used. The record of access shall be open to public inspection during normal operating hours of the department.
(8) Notwithstanding any other provision of law, no part of the confidential information shall be available for subpoena, nor shall it be disclosed, discoverable, or compelled to be produced in any civil, criminal, administrative,
or other proceeding, nor shall this information be deemed admissible as evidence in any civil, criminal, administrative, or other tribunal or court for any reason.
(9) Nothing in this subdivision shall prohibit the publication by the department of reports and statistical compilations that do not in any way identify individual cases or individual sources of information.
(10) Notwithstanding the restrictions in this subdivision, the individual to whom the information pertains shall have access to his or her own information in accordance with Chapter 1 (commencing with Section 1798) of Title 1.8 of the Civil Code.