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ACR-142 Scleroderma Awareness Month.(2007-2008)

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ACR142:v96#DOCUMENT

Assembly Concurrent Resolution No. 142
CHAPTER 76

Relative to Scleroderma Awareness Month.

[ Filed with Secretary of State  July 03, 2008. ]

LEGISLATIVE COUNSEL'S DIGEST


ACR 142, Sharon Runner. Scleroderma Awareness Month.
This measure would declare June 2008 as Scleroderma Awareness Month.
Fiscal Committee: NO  

WHEREAS, Scleroderma is a chronic, disabling autoimmune disease in which the body’s soft tissues suffer from an overproduction of collagen; and
WHEREAS, Scleroderma can affect many parts of the body including skin, internal organs, and blood vessels; and
WHEREAS, Scleroderma sufferers often experience damage to the heart, lungs, kidneys, and the gastrointestinal system; and
WHEREAS, Many sufferers develop pulmonary hypertension as a result of constriction of the blood vessels; and
WHEREAS, African Americans are more susceptible to systemic scleroderma; and
WHEREAS, Researchers have yet to identify the exact cause or causes of scleroderma; and
WHEREAS, Researchers have found links between scleroderma and rheumatic disease; and
WHEREAS, An estimated 300,000 Americans suffer from scleroderma, and 80 percent of those are women; and
WHEREAS, The estimated total economic impact of scleroderma treatment is estimated to be in excess of $1.5 billion annually; and
WHEREAS, The morbidity cost associated with scleroderma is an estimated $819,000,000 annually; and
WHEREAS, The direct cost of treatment for scleroderma is estimated to be $462,000,000 annually; and
WHEREAS, There is a significant need for further research focusing on the epidemiology of scleroderma to increase understanding of the causes of the disease and its treatment; and
WHEREAS, The United States Congress has recognized the need to raise awareness of the impact of scleroderma on public health and has designated a National Scleroderma Awareness Month; and
WHEREAS, California should also designate a month as Scleroderma Awareness Month to help educate the public about autoimmune diseases and the need for increased research, funding, and effective treatments for those diseases; and
WHEREAS, The designation of such a month would recognize the efforts of health care providers, patients, and scleroderma advocacy organizations to increase awareness of scleroderma and of the need for increased research on scleroderma; and
WHEREAS, June 2008 would be an appropriate month to designate as Scleroderma Awareness Month; now, therefore, be it
Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature proclaims the month of June 2008 as Scleroderma Awareness Month; and be it further
Resolved, That the Chief Clerk of the Assembly transmit copies of the resolution to the author for appropriate distribution.