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SB-980 Privacy: genetic testing companies.(2019-2020)

Senate:
1st
Cmt
2nd
Cmt
2nd
3rd
Pass
Pass
Veto
Assembly:
1st
Cmt
2nd
Cmt
2nd
3rd
Pass
Bill Status
SB-980
Umberg (S)
-
Allen (S) , Bauer-Kahan (A) , Gabriel (A)
Privacy: genetic testing companies.
03/13/20
An act to add Chapter 2.6 (commencing with Section 56.18) to Part 2.6 of Division 1 of the Civil Code, relating to privacy.
Senate
09/03/20
08/25/20

Type of Measure
Active Bill - In Floor Process
Majority Vote Required
Non-Appropriation
Fiscal Committee
State-Mandated Local Program
Non-Urgency
Non-Tax levy
Last 5 History Actions
Date Action
11/30/20 Last day to consider Governor's veto pursuant to Joint Rule 58.5.
09/25/20 In Senate. Consideration of Governor's veto pending.
09/25/20 Vetoed by the Governor.
09/09/20 Enrolled and presented to the Governor at 3 p.m.
08/31/20 Assembly amendments concurred in. (Ayes 39. Noes 0. Page 4568.) Ordered to engrossing and enrolling.
Governor's Veto Message
To the Members of the California State Senate:

I am returning Senate Bill 980 without my signature.

This bill would establish requirements for direct-to-consumer genetic testing companies, providing opt-in privacy rights and protections for consumers.

I share the perspective that the sensitive nature of human genetic data warrants strong privacy rights and protections.

However, the broad language in this bill risks unintended consequences, as the "opt-in" provisions of the bill could interfere with laboratories' mandatory requirement to report COVID-19 test outcomes to local public health departments, who report that information to the California Department of Public Health. This reporting requirement is critical to California's public health response to the COVID-19 pandemic, and we cannot afford to unintentionally impede that effort.

Because I agree with the primary goal of this bill, I am directing the California Health and Human Services Agency and the Department of Public Health to work with the Legislature on a solution that achieves the privacy aims of the bill while preventing inadvertent impacts on COVID-19 testing efforts.

Sincerely,





Gavin Newsom