Bill Text

Bill Information


Bill PDF |Add To My Favorites | print page

SCR-106 GM1 Gangliosidosis Awareness Day.(2023-2024)

SHARE THIS: share this bill in Facebook share this bill in Twitter
SCR106:v97#DOCUMENT

Senate Concurrent Resolution No. 106
CHAPTER 34

Relative to GM1 Gangliosidosis Awareness Day.

[ Filed with Secretary of State  April 11, 2024. ]

LEGISLATIVE COUNSEL'S DIGEST


SCR 106, Padilla. GM1 Gangliosidosis Awareness Day.
This measure would declare May 23, 2024, as GM1 Gangliosidosis Awareness Day in California.
Fiscal Committee: NO  

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and
WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and
WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and
WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and
WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2024, as GM1 Gangliosidosis Awareness Day in California; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.