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SB-643 The Holden-Moscone-Garamendi Genetically Handicapped Persons Program: Duchenne muscular dystrophy.(2017-2018)

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Date Published: 02/17/2017 09:00 PM
SB643:v99#DOCUMENT


CALIFORNIA LEGISLATURE— 2017–2018 REGULAR SESSION

Senate Bill No. 643


Introduced by Senator Pan

February 17, 2017


An act to amend Section 125130 of the Health and Safety Code, relating to public health.


LEGISLATIVE COUNSEL'S DIGEST


SB 643, as introduced, Pan. The Holden-Moscone-Garamendi Genetically Handicapped Persons Program: Duchenne muscular dystrophy.
Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program, requires the Director of the State Department of Health Care Services to establish and administer a program for the medical care of persons with genetically handicapping conditions, including, but not limited to, cystic fibrosis, hemophilia, sickle cell disease, and Huntington’s disease. The program also provides access to social support services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.
This bill would add Duchenne muscular dystrophy to the list of medical conditions eligible for the program.
Vote: MAJORITY   Appropriation: NO   Fiscal Committee: YES   Local Program: NO  

The people of the State of California do enact as follows:


SECTION 1.

 Section 125130 of the Health and Safety Code is amended to read:

125130.
 (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntington’s disease, Friedreich’s Ataxia, Joseph’s disease, Von Hippel-Landau Hippel-Lindau syndrome, Duchenne muscular dystrophy, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilson’s Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.
(b) The program shall also provide access to social support services, services that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, in order that the genetically handicapped person may function at an optimal level commensurate with the degree of impairment.
(c) The medical and social support services may be obtained through physicians and surgeons surgeons, Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. “Medical care,” as used in this section, is limited to noncustodial medical and support services.
(d) The director shall adopt regulations that are necessary for the implementation of this article.