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SCR-91 Scleroderma Awareness Month.(2011-2012)

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SCR91:v96#DOCUMENT

Senate Concurrent Resolution No. 91
CHAPTER 70

Relative to Scleroderma Awareness Month.

[ Filed with Secretary of State  August 09, 2012. ]

LEGISLATIVE COUNSEL'S DIGEST


SCR 91, Runner. Scleroderma Awareness Month.
This measure would proclaim June 2012 as Scleroderma Awareness Month.
Fiscal Committee: NO  

WHEREAS, Scleroderma is a chronic, disabling autoimmune disease in which the body’s soft tissues contract and harden from an overproduction of collagen; and
WHEREAS, Scleroderma can affect many parts of the body including skin, internal organs, and blood vessels; and
WHEREAS, Scleroderma sufferers often experience damage to the heart, lungs, kidneys, and the gastrointestinal tract; and
WHEREAS, Scleroderma is associated with many other conditions including pulmonary hypertension, gastroparesis, Raynaud’s phenomenon, Sjögren’s syndrome, and lupus; and
WHEREAS, Choctaw Native Americans, African Americans, and Hispanics are disproportionately affected by scleroderma; and
WHEREAS, Researchers have yet to identify the exact cause or causes of scleroderma; and
WHEREAS, An estimated 300,000 Americans suffer from scleroderma, and 80 percent of those are women; and
WHEREAS, The estimated total economic impact of scleroderma treatment is estimated to be in excess of $1.5 billion annually; and
WHEREAS, There is a significant need for further research focusing on the epidemiology of scleroderma to increase understanding of the causes of the disease and its treatment; and
WHEREAS, The United States Congress has recognized the need to raise awareness of the impact of scleroderma on public health and has designated June as National Scleroderma Awareness Month; and
WHEREAS, California should also designate a month as Scleroderma Awareness Month to help educate the public about autoimmune diseases and the need for increased research, funding, and effective treatments for those diseases; and
WHEREAS, The designation of such a month would recognize the efforts of health care providers, patients, and scleroderma advocacy organizations to raise awareness of scleroderma and of the need for increased research on scleroderma; and
WHEREAS, June 2012 would be an appropriate month to designate as Scleroderma Awareness Month; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature proclaims the month of June 2012 as Scleroderma Awareness Month; and be it further
Resolved, That the Secretary of the Senate transmit copies of the resolution to the author for appropriate distribution.