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AB-2034 Medical care: genetically handicapping conditions. (2011-2012)

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Enrolled  August 31, 2012
Passed  IN  Senate  August 23, 2012
Passed  IN  Assembly  August 27, 2012
Amended  IN  Senate  August 21, 2012
Amended  IN  Senate  June 15, 2012
Amended  IN  Assembly  May 25, 2012
Amended  IN  Assembly  March 29, 2012
Amended  IN  Assembly  March 14, 2012

CALIFORNIA LEGISLATURE— 2011–2012 REGULAR SESSION

Assembly Bill
No. 2034


Introduced  by  Assembly Member Fuentes
(Principal Coauthor(s): Assembly Member Bonilla)

February 23, 2012


An act to add and repeal Section 125191.5 of the Health and Safety Code, relating to health services.


LEGISLATIVE COUNSEL'S DIGEST


AB 2034, Fuentes. Medical care: genetically handicapping conditions.
Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program (GHPP), requires the Director of Health Care Services to establish and administer a program for the medical care of persons with specified genetically handicapping conditions and for persons with specified hereditary metabolic disorders.
Existing law, the federal Patient Protection and Affordable Care Act (PPACA), among other provisions, reformed certain aspects of the private health insurance industry and public health insurance programs.
This bill would require the State Department of Health Care Services to prepare a report on the coverage needs of the population served by the GHPP after the implementation of the PPACA. This bill would require the report to address, among other things, preservation of the availability of wrap-around services that would otherwise not be available through the PPACA and the extent to which a person with genetic amyotrophic lateral sclerosis will continue to have unmet medical needs after implementation of the PPACA. This bill would require the department to submit the report to the relevant fiscal and policy committees of the Legislature by January 1, 2015.
Vote: MAJORITY   Appropriation: NO   Fiscal Committee: YES   Local Program: NO  

The people of the State of California do enact as follows:


SECTION 1.

 Section 125191.5 is added to the Health and Safety Code, to read:

125191.5.
 (a) The department shall prepare a report on the coverage needs of the population served by the Genetically Handicapped Persons Program after implementation of the federal Patient Protection and Affordable Care Act (Public Law 111-148). The report shall address all of the following:
(1) Wrap-around services that will not be available, in the absence of the Genetically Handicapped Persons Program, after implementation of the federal Patient Protection and Affordable Care Act.
(2) Continued coverage for any residual services and populations.
(3) The extent to which a person with genetic amyotrophic lateral sclerosis (ALS) will continue to have unmet medical needs after implementation of the federal Patient Protection and Affordable Care Act.
(b) In developing the report described in subdivision (a), the department may consult with stakeholders, representatives of Genetically Handicapped Persons Program providers, persons with genetically handicapped conditions, special care centers, genetic disease medical experts, and other interested persons.
(c) The department shall submit, in accordance with Section 9795 of the Government Code, the report described in subdivision (a) to the relevant fiscal and policy committees of the Legislature by January 1, 2015.
(d) This section shall remain in effect only until January 1, 2019, and as of that date is repealed, unless a later enacted statute, that is enacted before January 1, 2019, deletes or extends that date.